4/23: Free Online Event on Long COVID & Disability Justice: Listening for the Long Haul Launch!
"This project highlights the lived experiences of people with Long COVID and associated conditions, and the importance of amplifying diverse voices in healthcare and research."
I’m beyond excited about this event on April 23.
It will launch one of the most important projects I’ve been honored to be a (small) part of, and features some of my favorite people working for Long COVID and disability justice!
Listening for the Long Haul is a storytelling/oral history project that has been training people living with Long COVID and graduate students (many of whom are themselves chronically ill) to collect, analyze and share the lived experiences of primarily Black and Brown female and femme people with Long COVID.
It’s a collaboration between Long COVID Justice (LCJ) and History Moves, which is a project anchored by Dr. Jennie Brier of UIC. Jennie was interviewed on the project a year ago here.
The interview gives a good feel for the way the project was held with such care— and also why more resources are needed for this kind of work! If you have the means, please make a donation to Long COVID Justice.
(I was one of the founders of Long COVID Justice, a project of Strategies for High Impact and was fortunate to be able to serve as co-director till the end of last year. In that role, I helped conceptualize the project along with Jennie and LCJ co-director Emi Kane. Emi went on to direct the project from our end, and I can’t think of a better person to have done that!).
The launch is going to be co-hosted by the wonderful Jacqueline E. Luciano along with Sarah Kim-Williams.
Jacquie is “a Narrative Architect with Long COVID Justice’s Listening for the Long Haul project as well as a BIPOC Fellow” with LCJ. As a Fellow, Jacquie wrote this powerful essay for The Sick Times: My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.
Here’s the schedule and presenters - hope you can join in! Note to my fellow East Coasters - the schedule is in Central Time, so it’ll be an hour later here.
✧ Learn more & register: tiny.cc/Breathing4Justice. The schedule is subject to minor changes - get updates at tiny.cc/b4j-info)
Part I
10:00 AM - 12:30 PM CT
1. Celebrate the launch of the Listening for the Long Haul website with Emi Kane and Kaimara Herron-July, MA. This project highlights the lived experiences of people with Long COVID and associated conditions, and the importance of amplifying diverse voices in healthcare and research.
2. Join for presentations and conversation with:
Gabriel San Emeterio, LMSW (LCJ Senior Fellow)
Tracey J. Thompson, Narrative Architect with Listening for the Long Haul and founder of Black Indigenous Racialized Covid Health / BIRCH)
Maynard Sasis, RN
Part II – 1:30 PM - 3:30 PM CT
1. Hear from featured speakers, Jennifer Brier, PhD and Iliana Pagán Teitelbaum, PhD, about the intersections of disability, chronic conditions, and academia.
2. Join us as we examine the impact of Long COVID on communities of color, disability justice, and discuss how education and oral history can inform better policies for pandemics and mass-disabling events.
3. Participate in a Q&A and community discussion.
This program is made possible in part by grants from Illinois Humanities and the American Association of People with Disabilities (AAPD).
More info on the event, including access notes:
WHO SHOULD ATTEND:
This webinar is for the public, including the disabled & chronically ill communities, higher ed students, staff, faculty, long-haulers seeking understanding & support, healthcare professionals, researchers, mental health professionals, families, caregivers, public health officials, advocates, educators, & policymakers. The event will also be valuable for anyone interested in understanding the long-term impacts of infection & exposure-related chronic conditions, disabilities, & ongoing research.
ACCESS NOTES:
• Presentations in spoken English
• ASL (American Sign Language) & Live Captioning (CART)
• Audio description of visual materials
• Format: presentations, with opportunities for Q&A and discussions
• You’re welcome to join for the full webinar or any part of it
• Participation in chat or Q&A is optional. Having video on is encouraged, but not required
• Webinar recording will be emailed to all registrants and shared online & on social media
SPONSORS
• This program is made possible in part by grants from Illinois Humanities and American Association of People with Disabilities (AAPD)
QUESTIONS?
breathing4justice@gmail.com
Thanks for sharing, looking forward to it! <3