Thanks for writing about this. I've just had an early positive on my PlusLife Machine, I don't even want to write what number infection it is. I'm already so so sick with ME/CFS and LC and take so many precautions but if my ND kid wants to live well, live a full life I can't shield to the extent I would if I wasn't a parent. Again the sick and disabled carry the burden for a society that doesn't see precautions as necessary anymore. The grief and rage is so real.
Hope your ankle continues to heal.
Appreciate hearing of your sinus troubles and MCAS. Nasal Cromolyn is on my list to request from my GP today, I never had sinus issues before covid and hope it'll help the mast cell related sinus troubles.
All so real and so hard. I hope this round is as minimal and non-problematic as possible.
Do you have info/ access to the things that may mitigate C severity or chronicity? https://substack.com/@pharmd has some great info.
Nasal cromolyn sodium is over the counter in the US, generic or name brand Nasalcrom — though the oral version requires prescription. But requires provider approval where you live? DM if you want to chat further about access or workarounds.
Thank you 😊 Yes, I was reading that article again yesterday. I'm already on metformin, my GP and o agreed to increase my dose. I have anti histamines and melatonin, I might try and choose one of those supplements from the long covid pharmacist's list. I live in Aotearoa/New Zealand so will need to get Cromolyn prescribed. I totally forgot to mention it to my GP yesterday, covid brain fog is real. RAT still negative ofc, makes me very grateful for the queer mutual aid which allowed me to have a PlusLife Machine.
Thanks for writing about this. I've just had an early positive on my PlusLife Machine, I don't even want to write what number infection it is. I'm already so so sick with ME/CFS and LC and take so many precautions but if my ND kid wants to live well, live a full life I can't shield to the extent I would if I wasn't a parent. Again the sick and disabled carry the burden for a society that doesn't see precautions as necessary anymore. The grief and rage is so real.
Hope your ankle continues to heal.
Appreciate hearing of your sinus troubles and MCAS. Nasal Cromolyn is on my list to request from my GP today, I never had sinus issues before covid and hope it'll help the mast cell related sinus troubles.
In solidarity from the c trenches.
All so real and so hard. I hope this round is as minimal and non-problematic as possible.
Do you have info/ access to the things that may mitigate C severity or chronicity? https://substack.com/@pharmd has some great info.
Nasal cromolyn sodium is over the counter in the US, generic or name brand Nasalcrom — though the oral version requires prescription. But requires provider approval where you live? DM if you want to chat further about access or workarounds.
Thank you 😊 Yes, I was reading that article again yesterday. I'm already on metformin, my GP and o agreed to increase my dose. I have anti histamines and melatonin, I might try and choose one of those supplements from the long covid pharmacist's list. I live in Aotearoa/New Zealand so will need to get Cromolyn prescribed. I totally forgot to mention it to my GP yesterday, covid brain fog is real. RAT still negative ofc, makes me very grateful for the queer mutual aid which allowed me to have a PlusLife Machine.